Andrew Update

We apologize for not updating you for so long.

Andrew has been doing so well!!! It’s been a tremendous blessing! He is making great progress and we couldn’t be happier. He is only doing IVIG every other week now compared to weekly. His amount of daily medications has been cut in half! His energy levels have been pretty good ever since we made radical changes in our diet. We have eliminated all processed foods and are following The Daniel Plan. Homeschooling has proved to be very helpful for Andrew and is helping him to catch up with where he should be academically. He is still a little behind in a few subjects, but should be on pace with students his age after next year. He hasn’t been hospitalized for a long time now. It’s been such a miracle and blessing to see him doing so well. We can’t thank you enough for all of your prayers and support over the past 5 years. Many of you have followed Andrew’s journey and know that we all faced some very scary times with Andrew and his health. At this point, we are not sure if he truly has Mitochondrial disease. We honestly don’t know the cause of all his health issues has been and we may never know. However, at this point are very thankful that he is doing so well regardless if we ever find out what the cause has been. Don’t get me wrong, he still has significant health issues, but they have been manageable and he has remained stable for some time now.

Thank you so much for all of your prayers, encouragement and financial support over the years. I don’t think we could have made it to this point with out you.

Love,
The Madonia’s

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One thought on “Andrew Update

  1. Hello,

    My name is Amanda. I am a student at UGA with mitochondrial disease; I was diagnosed in 2010. I know personally how tough the struggle for diagnosis is and how treating the symptoms this disorder causes is another battle entirely.

    One of the most important parts about my diagnosis was realizing I wasn’t alone in the struggle with this rare and mysterious disease. I’ve been working for the Foundation for Mitochondrial Medicine since May of 2013. Their website is http://mitochondrialdiseases.org/. They provide a lot of information about treatments and research about mitochondrial disorders that you may find interesting.

    Please, feel free to contact me anytime at anc19@live.com. I would also be happy to help you if you would like any advice about dealing with this disorder; I have had practice since 2008.

    Thank you for your time,
    Amanda

    Like

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